Meet Others Attending the 2025 Survivorship Symposium

About Me:  My husband, Robin, recently completed his stem cell transplant. We are continuing to learn!

I am also a living kidney donor and the team manager for Team MN-DAK, which promotes transplantation and competes in the Transplant Games of America.

About Me:  I’m going to be nine years since diagnosis of CML. Dr was sure that it was contained within my blood. And was told that I had the best of the worst and could control it with glevic, one pill a day for the rest of life four months later when I started getting these headaches that were short and very painful lasting for 10 to 15 minutes. After four trips to ER one of the emergency room doctors suggested that they needed to do a spinal tap and it confirmed that my CML had crossed the bone blood barrier. I had CML in my central nervous system. Drs recommended that they needed to insert a Omaya port in my skull to make access to my central nervous system easier for me to receive treatments. This was in November of 2016 and still have it today as a reminder. In January of 2017 I was admitted to SCCA/UW. I was preparing for Stem Cell transplant and my sister was my donor. Drs told me more than once that my chances of survival were slim. I had my transplant on February 29, 2017. Don’t remember one day of March. Things started getting better in April. I had some very interesting situations going on during recovery. Nurses have to have some funny stories about their patient. I know my wife bless her heart was by my side and the best advocate ever. Not sure I wound be here today without her support. My goal was to be home for my son’s wedding mid June 2017 and I return home 3 days early. I thank God for my family and blessings.

About Me:  Hi, my name is Marc, I’m 57, from Victoria, BC — originally from Montreal and a French speaker. I was diagnosed with diffuse large B-cell lymphoma in December 2023. After R-CHOP chemo and a stem cell transplant, I underwent CAR-T therapy (Yescarta) in April 2024. I’m back at work now and being closely monitored — with a biopsy coming up soon to investigate some suspicious neck activity detected by the last PET scan. Fingers crossed it’s just inflammation or those CAR-T cells still doing their job!

About Me:  I just had a successful bone marrow transplant with little to no GVHD.

About me:  Hello.  I would love to hear from any and all MDS survivors. As I have been dealing with weight loss (unless I over eat), being cold (I have to over dress to be warm), and oral CGVHD as well as skin CGVHD. From what I have found out is that AML patents don't suffer from weight loss, but weigh gain. I would like to know what medications, exercises or supplements that have helped you.

About me:  Always seeking to learn more about my cancer and related diseases and their treatments. Just passed the 4th anniversary of my SCT. I’ve been cancer-free but dealing with respiratory and immune systems. Thank you, BMT InfoNet, for all you do, and wish all good outcomes with their treatments!

About me:  My name is Kimberly, I'm 36. I was diagnosed with FA in October 1997, and had my BMT in November 1997. My Brother was my donor. I just got diagnosed with Esophageal Cancer last year and under gone an esophagectomy. I am currently cancer-free. I love to be outdoors, hiking, rock climbing, kayaking, and I love to paint.

About me:  I was diagnosed with multiple myeloma in 2021 while in my 13th year as a law enforcement officer. Unfortunately, I had to medically retire. I’m still adjusting to my “new normal” way of life, I’m always looking for ways to bless others, and I’m also eager to learn new things about treatment and survival of cancer.

About Me:  My son was 2 years old and my daughter, just 4 months old when I was diagnosed with CML in 2000. It was devastating to think that I might not be there to guide and nurture them. In 2003, I had an allogeneic stem cell transplant with an unrelated, mismatched donor at the UW/Fred Hutch Center in Seattle. For 16 years, I stayed in remission, but in 2009, I lost that remission. Fortunately, Gleevec was able to put me back into a major molecular remission that I have maintained to this day. My son is a filmmaker and cinematographer and my daughter is a mechanical engineer. So grateful to have been in their lives for so many years.

About Me: Bone marrow transplant survivor for almost 18 years!

About me:  I’m scheduled for a BMT in June 2025 and want to learn as much as possible about the recovery process and managing the possible side effects of the various medications that I will be exposed to.

 

About me:  I reached my 20th year post transplant last September and I've been blessed to meet my donor a few times. I'm not all that interesting but the fact that I'm here twenty years later and have been able to watch my 4 year-old grow up to be a man and share that life with him is something that I never thought would happen. We've made memories and I've seen all the moments of his life. Life after transplant is a blessing and gift that there aren't words to describe. Gratitude doesn't begin to cover it. I want to share experiences with other recipients and find out if what I experience, healthwise, is similar to others with my medical history. I attended in person one year and it was the most emotional experience. I took away so much from that few days. I want to experience that again. The picture I shared is the day I rang the bell and a meeting with me and my donor years later