The Fanconi Anemia Research Fund (FARF) is the world leader in advancing research for better treatments and a cure for Fanconi anemia. Our mission is to find better treatments and a cure for Fanconi anemia and to provide education and support services to affected families worldwide.
Website: www.fanconi.org
Phone: 541-687-4658 x 303 for Support Services; 1-888-326-2664 toll free
Email: info@fanconi.org or Rosie Holcomb, Family Services Program Manager Rosie@fanconi.org